![]() ![]() We wanted it to be something anyone could relate to, whether they're disabled or not. We wanted to humanize the disabled experience. The other thing was we wanted people to see us as human because a lot of us are not always treated that way. GOOGLE PATENT VIDEO COLLABORATORY CELINE PROFESSIONALA lot of the people in the video are doing professional stuff, like social media influencers Shane Burcaw and Hannah Aylward. I want people to go on YouTube and say 'Oh hey, there's another music video I should check out.' We are artists. We wanted it to be like any other music video. A group of us with SMA got together in June to talk about it. They said 'We want this to be legitimate art,' so I said well, sign me up.īLOOM: What did you hope to convey in the video?ĭominick Evans: First and foremost it's art. The second thing was this can't be inspiration porn. ![]() So it was really important that diversity be a part of it. As a multiply marginalized person-I'm queer, non-binary and trans-I also recognize that we are primarily represented as white, cisgender heterosexual males. As a white disabled person, I recognize that I have a lot of privilege. I didn't want to sign anything until I knew it would be done the way I wanted.įirst, I needed it to reflect the diversity of the SMA community. ![]() "It's the representation I never got as a kid," Dominick says.ĭominick Evans: Earlier this year I was approached by people that were representing Genentech who said they wanted to make a video for the SMA community. The video was sponsored by biotech company Genentech, which launched a new SMA treatment last year. SMA is a rare genetic condition that causes muscles to weaken. Both artists have spinal muscular atrophy (SMA), as do many of the people in the video. A mother and toddler dance, a girl rides on her mom's wheelchair, and well-known YouTubers Squirmy and Grubs kiss at their wedding. It was filmed in Los Angeles with singer-songwriter James Ian, and directed by filmmaker Dominick Evans, via an iPad, from his bed at home just outside Detroit. Spaces is a new music video with a twist. ![]()
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